To the members of CNS,
We are creating a registry to capture patients with autoimmune encephalitis and rare epilepsy syndromes with possible autoimmune/inflammatory etiologies, including Rasmussen encephalitis and Landau Kleffner syndrome. We are sending a brief survey to assess what research topics are of importance and interest.
Please fill out the survey by clicking the link below by July 31, 2021 after which the survey will close. Thank you for your participation!
https://redcap.tch.harvard.edu/redcap_edc/surveys/?s=EXHH9XYNJD
Sincerely,
Coral Stredny, MD and Grace Gombolay, MD
PLEASE NOTE: This email was sent to CNS members with the approval and cooperation of the Child Neurology Society. A fee was paid to the Child Neurology Society for providing this email service. Official notice is hereby given that the CNS does not officially endorse the product, service, research/study, position, event or company/institution referenced, nor is any implication of endorsement intended by the contracting party. The CNS never releases member email addresses. Members may decide individually to provide their own email to third parties but are strictly prohibited from providing any member emails other than their own for any reason.
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