Child Neurology Foundation

The Child Neurology Foundation’s mission is to be an advocate for children and adolescents with neurologic and developmental disorders through the advancement of child neurology. The CNF:
• Serves as an advocate for children and adolescents with neurologic and developmental disorders
• Funds neurologic research of young investigators
• Promotes awareness of career opportunities in Child Neurology
• Provides public and patient educational programs

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National Institute of Neurological Disorders and Stroke (NINDS)

A storehouse of information and links for professionals and the public from “the nation’s leading supporter of biomedical research on disorders of the brain and nervous system.” 

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MedLine Plus

Informative, reliable, and user-friendly web resource for patients and parents supported by National Library of Medicine and National Institutes of Health.

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PubMed

A service of the National Library of Medicine, provides access to over 12 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.

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The Glut1 Deficiency Foundation

The Glut1 Deficiency Foundation is a volunteer, non-profit family organization dedicated to:

  • Educating others about Glut1 Deficiency by creating a forum for sharing support, experiences, resources, and information between patients, families, and healthcare professionals.
  • Increasing awareness of and advocacy for Glut1 Deficiency.
  • Supporting and funding researchers as they work for a cure.

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Family Village

The Family Village Web Site, hosted by the University of Wisconsin, brings together in one site information and links to a vast array of information and services of value to families affected by neurologically based and numerous other disabilities.

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Exceptional Parent Magazine (Eparent.com),Exceptional Parent Magazine (Eparent.com)

Exceptional Parent Magazine’s on-line resource, “providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.”

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CenterWatch: Clinical Trials Listing Service

Information and listings of more than 41,000 active industry and government-sponsored clinical trials and new drug therapies in research and those recently approved by the FDA, including those for neurologic and neurodevelopmental disorders. 

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ClinicalTrials.Gov

Website hosted by NIH and National Library of Medicine to provide patients, family members and members of the public current information about clinical research studies.

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International Alliance for Pediatric Stroke (IAPS) 
The International Alliance for Pediatric Stroke (IAPS) was established to facilitate collaboration among the many international pediatric stroke communities. The purpose is to provide a stronger, more united voice to effectively advocate for newborns, babies, and children who have had a stroke. Our mission is to provide ease of access to information about pediatric stroke to families, caregivers, researchers, medical specialists, and anyone else involved with these children. In addition, our goal is to fill in the gaps where there is a lack of information and support, mainly in research and the education of the general public and medical communities.

IAPS leadership is comprised of child neurologists, other physicians providing healthcare for children with stroke, medical specialists, advocacy organization leaders, and parents of pediatric stroke survivors. We are partnered with the International Pediatric Stroke Study https://app3.ccb.sickkids.ca/cstrokestudy/, an internationally renowned group of neurologists and scientists who are increasing the understanding of perinatal and childhood stroke. IAPS is advocate driven and everything on the website is vetted by the physicians on our board to ensure credible, reliable information.

Research for pediatric stroke is historically under-supported and under-funded. This severely limits the ability to investigate important aspects of pediatric stroke, such as new treatments, factors influencing the quality of life of survivors, and causes and prevention of pediatric stroke.

One of the long-term goals of IAPS is to support and encourage the development of research in pediatric stroke by:

  • Funding young investigators who have leading-edge ideas for improving the lives of young stroke survivors.
  • Urging health care policy makers to dedicate research funding for the prevention, treatment and causes of pediatric stroke.
  • Seeking grants, sponsorships and philanthropic assistance.

We encourage you to get involved in any way you can, whether it’s through volunteering to raise awareness, attending an event or raising funds to further the mission of advocating for babies and children who have suffered a stroke.

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TREATMENT OF MIGRAINE HEADACHES IN CHILDREN AND ADOLESCENTS

Migraine headaches, or “sick headaches,” are recurring episodes of intense, pounding, nauseating head pain. The pain lasts for several hours to up to three days.

Migraine headaches are common in children and adolescents. Three percent of preschool children, four to 11 percent of elementary school children, and up to 23 percent of teenagers have migraines. As children reach their teenage years, the number of headaches may increase.

Lots of things can cause headache in children. So it is important to see your doctor to determine the correct diagnosis. 

Neurologists from the American Academy of Neurology (AAN) and the Child Neurology Society (CNS), who specialize in diseases of the brain and central nervous system, believe you should know about current treatment options for migraines in children and teens. Follow the link to access more information relevant to the treatment of migraine headaches in children and adolescents.

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