It is with great sadness that we report the death on April 12, 2015 of Bengt Hagberg, MD, PhD.  Dr. Hagberg was born on August 9, 1923 in Goteborg and spent most of his childhood in Stockholm, Sweden.  He credited his family and the upbringing it afforded him with his broad cultural and academic exposure at an early age and with the intellectual curiosity and sense of humor that so characterized his career in child neurology.  Dr. Hagberg was a pioneer and internationally renown thought-leader in metabolic and genetic encephalopathies.  He contributed seminal insights on the genetic hyperammonemias, ceroid lipofuscinoses, and Rett syndrome to our understanding of neurodevelopmental disabilities.  Those of us who were fortunate enough to have heard his Hower Award lecture in 1993 and his talk at the Neurobiology of Disease in Children course on Rett syndrome some 12 years later can attest to Dr. Hagberg’s formidable intellect, approachable style, and biopsychosocial appreciation of the challenges that children and families with neurodevelopmental disorders face every day.

It is perhaps his own autobiography, written at the urging of his close friend and colleague, Dr. Alan Percy, and published in Journal of Child Neurology by Dr. Roger Brumback, that really captures the spirit of Bengt Hagberg much better than any eulogy could.  You can read this wonderful article by clicking here.

Dr. Hagberg's longtime friends and colleagues, Drs. Alan Percy and

Mårten Kyllerman have co-authored a tribute for the CNS website (and subsequent re-printing in Pediatric Neurology and the Journal of Child Neurology) that can be accessed by clicking here.


Nina F. Schor, MD, PhD
President, Child Neurology Society